Hi everyone! I can't believe it has been five days since our last post...time seems to be playing tricks on us as of late. Brady and I both feel like we are in a state of "suspended animation," focusing on our babies while the rest of the world keeps on marching by. Every once in a while I will check in with the outside world to realize that a week or more has gone by and I need to pay bills, or check my phone messages, or that I have no clean clothes, and it amazes me each time that I can become so disconnected from what was once my everyday life. Hopefully soon we can all be under one roof and can begin to figure out some sort of routine, but until then, please don't take it personally if I don't return phone calls right away!
The past few days have been full of ups and downs for our little ones...many people have compared having babies in the NICU to a prolonged roller coaster ride, and we feel that this is a pretty accurate analogy. Luckily, we have had more ups than downs during our stay so far, but the whole experience has been frustrating and a bit heartbreaking at times. In my last few posts I have mentioned that our biggest remaining hurdle to overcome was getting the twins to stay awake for their feeds so that they will not have to rely on their gavage tubes for nourishment. Both babies continue to make progress in this area and are taking more and more of their feeds by mouth every day. Will has become a champion eater in the past few days, and is now giving his sister some steep competition on the eating front!
However, Will has also encountered a new struggle this week. After being fine breathing room air for about nine days, his blood oxygen levels began to dip and he has had to receive a little bit of oxygen via a nasal cannula on and off for the past few days. We aren't sure what is causing this respiration issue, but the doctors did find that his blood count was a bit low last week, which could be the culprit. They will repeat the labs again tomorrow, and if there has been no improvement they will most likely give him a blood transfusion. Please keep baby Will in your prayers- we are hoping that this can be resolved quickly so he can get back on track to coming home with us!
Here are a few more pics that I snapped this week- enjoy!
 |
| It's a bird! It's a plane! It's SUPER BABY! |
 |
A big yawn- and a rare moment without any wires or tubes :)
|
 |
Sweet baby girl
|
 |
Daddy washing Will's hair
|
 |
Hangin' with Nan
|
 |
Granddad's sidekick
 |
| Bye bye! |
|
They are so beautiful! Prayers cover your family...they have strong parents and family that will give them the strength they need to overcome each obstacle. Thinking about you...
ReplyDelete